Showing posts with label Shwachman-Diamond Syndrome. Show all posts
Showing posts with label Shwachman-Diamond Syndrome. Show all posts

Tuesday, March 5, 2013

Pledgemusic.com Project -Thomas's Song Music Video!

I've finally launched my pledgemusic project and I couldn't be more excited! I've chosen to make a music video for a song, Thomas's Song, off of my debut album! Pledgemusic.com is a website that allows artists like me to fund projects such as creating an album, organizing a tour...or making a music video (!) independently. By pledging on a certain project, you are helping to fund that project, and if you pledge, you get awesome rewards! For my project, Thomas's Song the Music Video, you can pledge anywhere between $15 and $1,000 and when you pledge, you will receive awesome prizes like a song of your choice dedicated to you on Youtube, a private house concert, or a chance to actually BE in the video!
I've also decided to donate 10% of my project's proceeds to the Swachman-Diamond Syndrome Foundation in the hopes of finding a cure for SDS! I not only want to help myself in finding a cure for my disease, but I want to help the many others like me who battle with SDS every day.

I hope that you will join me in making this music video by pledging and please share this project with your family and friends!

Thank you all for your continuous support already and I can't wait to see how this project turns out!

http://www.pledgemusic.com/projects/thomasssongmusicvideo


Thursday, December 20, 2012

Live performance of "Proud Mary" on Youtube!

New video out on Youtube! This time a live performance of Tina Turner's song "Proud Mary"! Probably the most fun I've ever had on stage. Performed at the annual Shwachman-Diamond Syndrome Foundation Fundraiser -AKA the Barndance. With over 200 people sweaty and dancing in our barn this year, we raised over $50,000!! Thank you so much to everyone who contributed and I'm sorry I'm posting this video so late!

Tuesday, September 25, 2012

New Song Out Called "Moving Foward" - Available on itunes this Thursday (9/27)!

Gracie wrote her new song "Moving Foward" about her struggles with her rare disease, Shwachman-Diamond Syndrome (for more info, visit the "About My Disease tab") and will release her new song on Thursday, September 27th. She will be performing her song on the 27th at the Tribute to Champions of Hope Gala in Newport Beach, California for the Global Genes/Rare Project, which is a non-profit organization helping to spread the awareness of rare diseases. For more information on the rare project, visit their website here: http://globalgenes.org/ Two versions of the song will be released: the full version (consists of strings, piano, bass, and vocals) and the acoustic version (just piano and vocals). Both will be available on itunes on Thursday, September 27th!

Press Release on Gala: http://www.wcax.com/story/19559325/recording-artist-elliott-yamin-to-duet-with-singer-songwriter-and-rare-disease-patient-gracie-van-brunt-at-global-genes-rare-project-benefit?clienttype=printable
 Gracie's Website: http://www.gracievanbrunt.com
Purchase both songs here on Thursday: http://itunes.apple.com/us/artist/gracie-van-brunt/id539053401?ign-mpt=uo%3D4